Tuesday, June 23, 2009

DAY +21: On Track

Praise and Thanks to the Caregivers

Charles Siegel
Cynthia (aka Cici) Winant

Note the new resource listing in the right panel:
"Caregiver's Guide for Bone Marrow/Stem Cell Transplant" provided to us by Denise Lillvis of the National Bone Marrow Transplant Link, as well as a link to that organization's home page.

Charley and Cici may have broken the code -- they have given Susan a dose of Atavan pre-emptively, ahead of her scheduled time for taking her medications. This seems to reduce the nausea significantly. As a result, Susan was feeling better when last we spoke earlier this evening.

Susan had a hard boiled egg and a slice of toast for breakfast, a banana for lunch, and a little pasta for dinner. She's drinking some (not the fun stuff, though) and continues to be relatively pain free. Of course, she's still very fatigued, and it's not as if she feels good, but she's definitely feeling better than before.

Tomorrow it's Dana Farber at 7:30 AM. Oiy. Tune in tomorrow night to learn what we learn.


  1. Dear Susan,
    I am so happy to hear you are feeling at least somewhat more comfortable. I'm sure a little relief means a lot.
    Sending you all my best,

  2. Hi Susan, Charley and CiCi,

    Charley and CiCi, what a great job you both are doing for Susan. I just wish I was closer so I could be there as well. So good to see that Susan is doing better today than yesterday. Can't wait to speak with her and see her in November. Lots of love, gig

  3. Dear Charley and Cici,
    I am so glad that you are there with Susan. Cici, I know that Susan is always happy when you are around--I'm thinking of your great trips to Paris together. So, this is really good news. Susan, I hope this BK virus is finally out of your system and you can regain strength.
    Thinking of you,

  4. Grateful for the continuing updates on your recovery, Susan. I love the fashion statement Charley is making in the photo...

    Hoping the next 24 hours brings increased recovery.

    With love--

  5. It sounds like Cici and Charley are doing a great job! Continued thanks to Jerry and Callie for keeping us updated. We're thinking of you often, Susan. Keep up the good work!