Sunday, June 14, 2009

DAY +12: Toughin' it out

Top Line: Pain had receded, now it's back; hoping vicodin will tide Susan over until tomorrow's appointment

Vicodin, which made a big difference in pain level yesterday, has been much less effective today. Still, it is doing something, and we hope doing enough so Susan will be able to hold out until her DFCI appointment tomorrow at 10 AM. If, indeed, the pain is due to rapid engraftment, at some point that does resolve by itself, so most probably this situation just needs the time to run its course.

Also, Susan's throat has come up sore today, and that, combined with the pain, has prevented her from eating, or even drinking beyond minimal amounts. Again, it's something for the medical team to consider tomorrow, so we should know more after her DFCI visit.

As I write, Charley is en route to spend some time with his mother. Bob doesn't know how long he plans to stay. They'll play it by ear, pending clarification of Susan's situation. I'll also be back in Boston tomorrow night with my Charley in tow, but just for a quick stop-in, and will update you from there.


  1. Hang in there, Susan! We think about you every day.

  2. good luck tomorrow...hope it goes well....over &out

  3. Thank goodness for this blog. We read it everyday, and our thoughts are with you.
    Much love,

  4. Susan, you are in our hearts. Hang in there!
    With much love,
    Susi and Pete

  5. We are thinking of you and hope the pain is more under control today.
    Barb and Peter

  6. We're right there with you, Love Susan & Harry

  7. hi Susan:

    Thinking of you and wondering whether you know the trick about plugging your ears when you swallow. It usually helps the pain significantly.
    love, Vicky

  8. dear dear susan, we send our fondest love to you and yours along with well wishes. hold on, this will pass. and, please, try to drink a little more;-) wish we were with you hugs, steven and liz

  9. I just heard what you're going through and about this blog. If positive and good thoughts help at all I am sending them daily. I hope the pain soon eases.
    If there's anything I can do to help out in any way please let me know.

    Love, Molli