The results of Susan's Dana Farber visit yesterday
- most of her "numbers" are within normal range now
- the few measures that are outside of range are expected to be so as a consequence of Susan's medication regimen and are no cause for concern
- Nurse Amy has pronounced the VOD gone and the ascites that's been occasioned by it nearly so
- her CMV test was negative which means that the team can consider taking her off the Valcyte (determination at next visit with Soiffer on 8/26); this will be good because the Valcyte is a significant contributor to her feelings of malaise
- the fact that Susan continues to be fatigued (but she no longer needs to sleep an inordinate amount of the time) and continues to feel somewhat Y**** (but this is improving, too) is par for the course, says Nurse Amy, especially given the complications Susan had and the consequent additional medications, which she largely continues to take
- NET: Susan's now where they'd like her to be (not Spencertown, per se, but in terms of medical condition) and is doing "very well"
The next DFCI visit will be Wednesday, 8/26, when Dr. Soiffer will be available and, we're hoping, will determine that (a) Susan can reduce or eliminate some of her medications and (b) move to a bi-weekly schedule of checkups. That would not only represent progress on the road to recovery but also a lot less wear and tear on the Siegels.
So, unless something unforeseen happens in the interim, expect the next blog update on the evening of 8/26. Until then . . . .