Thursday, May 28, 2009

Picture of Bob Siegel with unidentified masked woman claiming to be Myra Biblowit

"How has Susan's day gone?" You might ask. Well, let me tell you.
  • Susan's PIC line checked out OK so she has started what will be her daily chemotherapy protocol through Sunday. Think of it as a liquid sandwich -- fludarabine on busulfan bread in a 3-stage infusion that is spread out over 24 hours, with breaks in between the stages
  • Late this afternoon she was descended upon by a flock of dentists (5 to be exact, and we think it's bad when we have to see even one). The reason for the oral scrutiny is that the mouth is usually the first place to exhibit signs of Graft Versus Host Disease (GVHD description under the "Risks" heading towards the bottom of the blog page)
  • She has had a second line added (you've always known she's well-connected), a heplock line for IV fluids, primarily saline solution and nutrients, so she can multi-task her intake
  • She has her first visitor, a masked woman claiming to be Myra Biblowit
  • Her spirits are good (Susan's; don't know about the masked woman); she has been able to log on to the blog and deeply appreciates the supportive and caring sentiments you've all been offering


  1. Hey Jerry! Great job! This blog is really the best. I've learned so much. So happy that life is uneventful at Brigham and that Myra got to visit. Much love to all.

  2. Dear Susan,
    I'm so glad that things are progressing well. I know it will be a long journey, and not without difficulty, but I am confident that you're going to come through it just fine.
    P.S. I'm glad that Jerry's been able to help keep us, your family, and all your friends right there with you every step of the way. I'll make sure he stays on the job.


  3. Dear Susan, Glad you're doing this. It will be good to leave your leukemia behind you. I'm impressed with all your family support -- it makes a huge difference. If you ever feel like calling, my cell number is 202-641-7065. We're returning to DC about the time you'll be getting out of the hospital. Hope all goes well with the transplant. Love, Trave

  4. Yo Susan!

    Hurry up and get out of that place so you can start enjoying your BEAUTIFUL home designed by that world famous architect - what's his name?


    - Jim (WFA)

  5. Dear Susan,
    Just finished reading all updates.Rick was away and just returned with the computer. Glad you are doing OK.Wish I lived closer so I could be with you doing the recovery. I know in my heart that everything will be fine. The 1994 Mondavi Cab Reserve will be drinking beautifully on the garden roof next summer. You are in our thoughts always, Love to Bob and kids,

    gig & rick